Wow it has been so ling and so much has happened. Mom passed away, we have moved, and Riley has had a few "new discoveries". Her aortic valve is leaking and they have detected Aortic Stenosis. Not sure why this has not been discovered but possibly just monitoring the TGA. Who knows but I am adjusting. I try not to read too many stories about it because then I freak out which is the LAST thing I need. I am working on giving it to God and letting him do the work..which is easier said than done.
I got to see my friends and their kids over the weekend at my friend Leah's memorial for her Sweet CHD Angel Pierce. I was honored and amazed. It was beautiful and had a great turnout. I needed these parents at this time.
Now to the point. Riley possibly has a surgery coming up in June/July due to the leak getting larger with the blood regurgitating in the heart causing blue spells and stomach problems. I am blessed for such great doctors and great friends. I try and use my support group and other CHD moms, I know I couldn't make it without them! I just want to say thanks for the prayers, teh thoguhts, and the words of encouragement. Love you all and thanks...
Love yall Angee, it was SO great to see you this weekend!
ReplyDeleteKnow you are always in my prayers, no matter what! I hope we can stay in touch, I know you are having worry over your lil hero, because you are her mom and it would be impossible not to.
Just find your strength in the Lord
"Be anxious about nothing; but in everything by prayer and supplication with thanksgiving let your requests be made known unto God. And the peace of God, which passes all understanding, shall keep your hearts and minds through Christ Jesus." Philippians 4:6, 7
Hi
ReplyDeleteMy name is Jenna and I came across your site. Riley is an amazing, courageous, strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. She is beuatiful. I was born with a rare life threatening disease, and love it when people sign my guestbook. www.miraclechamp.webs.com
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