Riley's Heart

Thank you for visiting my daughter's site. She was born Dec.30,2008 with a Congenital Heart Defect called Transposition of the Great Arteries. She had her first procedure at 8 hours old and open heart surgery at 5 days old. Before Riley, I had no idea that CHD even existed. I know God put Riley in my life to help spread awareness, help other CHD families, and learn to love life. I take life one day at a time and thank God for each day he has given. Riley is my hero, my ray of sunshine. I hope that by telling her story that I can help spread awareness and support others, you are not alone!



Tuesday, February 15, 2011

Long time...

Wow it has been so ling and so much has happened. Mom passed away, we have moved, and Riley has had a few "new discoveries". Her aortic valve is leaking and they have detected Aortic Stenosis. Not sure why this has not been discovered but possibly just monitoring the TGA. Who knows but I am adjusting. I try not to read too many stories about it because then I freak out which is the LAST thing I need. I am working on giving it to God and letting him do the work..which is easier said than done.
I got to see my friends and their kids over the weekend at my friend Leah's memorial for her Sweet CHD Angel Pierce. I was honored and amazed. It was beautiful and had a great turnout. I needed these parents at this time.
Now to the point. Riley possibly has a surgery coming up in June/July due to the leak getting larger with the blood regurgitating in the heart causing blue spells and stomach problems. I am blessed for such great doctors and great friends. I try and use my support group and other CHD moms, I know I couldn't make it without them! I just want to say thanks for the prayers, teh thoguhts, and the words of encouragement. Love you all and thanks...