My new Blog Page!

So I am proud to say I have created a blog. Yes I know it is not as fancy as others but it gets my point across and that is what matters. The style will come later, contents is more important. Riley has a CHD, or Congenital Heart Defect, called Transposition of the Great Arteries. She had a balloon atrial seseptomy(?) at 8 hours old. A fancy word saying a heart cath that opens the hole in her heart more so her blood can mix to prolong her life so she could make it to DC for open heart surgery. She had open heart surgery at 5 days old. I have been through tons of trial in my life but NOTHING prepares you for seeing your newborn child after open heart surgery. She sees the cardiologist and will continue throughout her life. She has done well. The last visit the Cardiologist found that she has a leak in her aortic valve. Still unsure of what that means and what that entails but I gather, monitor, observe, and repair when needed. Anyway, I am grateful for each day that I have been given with her. I have made great friends. I have seen many CHD babies pass away and earn their wings. I choose to contribute to the CHD community because I had no idea that CHD's even existed until I was brought into this world with my little hero. I thank God for what I have in my life.